It might now take another year to even get an assessment.

Luke was born with a genetic disorder that means he can't walk or talk and has to be fed through a tube.

As he grows older and gets bigger the family are struggling to make do without specialist equipment.

Ian said: "Problems seem to be inherent in the system."

"We are reasonably well-funded with our care package but there are so many other areas where we could improve the quality of Luke's experience and help him develop.

"It is difficult to always be looking towards charitable trusts to be filling those gaps.

"You feel like you are begging. It is not for the icing on the cake – it is the cake."

Luke uses a standing frame at Ravenscliffe High School but can't bring it home except in the summer holidays.

Although he has some equipment at school, there are many items he needs at home, which he has to go without.

Ian, of Hebden Bridge, said: "We are left to try and find the extra money for duplicates and I am sure that is true of all families of children with disabilities."